On December 10, 2021, Russia registered an expensive Zolgensma drug that Murat Alimov, diagnosed with spinal muscular atrophy, needs so badly. The boy meets all the criteria for receiving the coveted injection from the “Circle of Kindness” Foundation. However, on 23 December, the boy’s parents received a refusal to undergo a consultation in Moscow, and a refutation that Murat fit the criteria. Thus, depriving their last hope for saving the child’s life.
